Adapted from episode 72 of The Perfect Stool podcast and edited for readability.
Einar Jordan has Associates degrees in chemistry and microbiology, a Bachelor of Science and a Master’s in Project Management. He is a quality and process engineer currently working as a Project Manager in Research & Development in the biotech industry. He has worked for over 25 years with Tissue, Medical Devices, Pharmaceutical, and Biologic companies in different capacities. He has done repeated fecal transplants on himself using his son’s stool to address various conditions including interstitial cystitis and chronic bladder pain, fibromyalgia, IBS, histamine intolerance, chronic tendonitis, joint pain and hair loss.
Lindsey:
So as I understand it, before resorting to a fecal transplant or FMT, you had already done a lot of things to address your health issues. Can you just give me a brief synopsis of when your health went downhill, why and what you did to address it up to the point of doing FMTs with your son’s stool?
Einar:
Okay, my health probably started going down around age 10, but it was not really noticeable until about 2006, when it really hit me like a ton of bricks. I developed interstitial cystitis of the bladder; they still call it today prostatitis, but it does not seem to have a significant link to the prostate. Eventually, with time, I started developing IBS, fibromyalgia, etc. So every couple of years, I was developing something new. The tendonitis was so probably before even the IC of the bladder, and my eyesight started deteriorating. I needed to have new glasses every year or two years; then my blood pressure started skyrocketing; triglycerides; I was prediabetic. I lost all my hair. The list… it’s hard to even remember the list of things that I was developing. I did not think I was going to live this long.
Lindsey:
TMJ, I think was another one on there.
Einar:
Yes, TMJ was probably one of the last ones. I thought I had an ear infection. So to treat this condition, I had to take Clonazepam for five years, which is an awful medication. I mean, it saved my life for that period of time. It allowed me to sleep. Eventually, your mental health starts to deteriorate and I had chronic anxiety and depression as a consequence. I had it before, but it got much worse, around four or five years.
Lindsey:
A lot of people may not know all these abbreviations or even what these conditions are about, but just briefly, interstitial cystitis is like urgency and just sort of a constant feeling almost like having a bladder infection, except that you don’t.
Einar:
Yes, you have to go to the bathroom about 50 to 60 times a day, so every 15 minutes or so. You feel like your bladder is full of blades and battery acid. You lose your ability to sleep, you start losing your mind very slowly; it is a horrible condition. I have a PhD in pain.
Lindsey:
Okay, and then TMJ stands for… what is it? Ten…
Einar:
Temporomandibular joint (corrected). I think it is sort of an arthritis condition of the jaw, where you feel like you have an ear infection at the same time as very bad discomfort in the jaw. Every time, you try to chew things, your jaw really starts getting inflamed. This kind of arthritis of the jaw.
Lindsey:
Okay and fibromyalgia. Talk a little bit about what the symptoms of that are like.
Einar:
Fibromyalgia, they sometimes call it separately, so brain fog, but it is pretty much a part of the same thing. You feel like you’re burning and you lose your capacity to process thoughts. You think very, very slowly. You’re exhausted all the time. You have very, very little energy. I never had chemotherapy, but that exhaustion that you get from chemotherapy and that weakness, it is something sort of like that to give you an image.
Lindsey:
Okay, and so when you say burning, you’re talking that your skin feels like it’s burning.
Einar:
Yeah, your skin and your muscle. For me it was the upper shoulders and arms. Anytime I lifted a 10 pound weight, I’d be exhausted for days, I’m burning.
Einar:
Okay, so go on with your story about what you did about all that.
Einar:
So when I try, because I come from a scientific background, I’m able to read a lot of research articles. I started doing experiments on myself based on whatever came out. If there was some medication that came out, I would immediately try to convince my doctor and I’d show him the research or how this is helping, but everything at least on me, was not helpful whatsoever. I even did some things for me because I had a pneumothorax, which means that my left lung collapsed at a very early age so it had to be stapled shut. I tried hyperbaric chamber therapy and that made you feel a little better for a little while, but it was short lived.
Eventually, some people figured out that dairy was the biggest cause of fibromyalgia. And it seems to be dairy. A big issue for at least most people that I think the theory is that lactose buildup puts pressure on the vagus nerve, so I cut out lactose. I started feeling better. My doctor kept on telling me to eat less meat and less fat and that just got me even worse, so I did the opposite. I actually ran into Michaela Peterson’s and Jordan Peterson’s story of how they healed themselves from multiple diseases with a carnivore diet. I did a keto diet; that was very helpful, then a carnivore diet was even better, but still I was unable to process foods because most of these conditions are very high histamine intolerance. My theory is that the histamine intolerance is due to the fact that the food is not being processed through your body, so it’s rotting. If you tried to eat more food, the higher the histamine, so I run into an IBS study, because the IBS was now driving me crazy, that they were successful for six months to two years doing an FMT and I decided to give it a shot.
I couldn’t figure out where I was to find the healthy donor. Then it dawned on me that, you know, I subconsciously was raising my children to have a better than average immune system or a microbiome. By feeding them very low carb diets, making sure they’re breastfed much longer. There were also vaginal births. There are all these conditions, all these things that improve the person’s microbiome, and keeping them away from antibiotics. I decided to test my son and it was very, very stressful. I tried to tell everybody that even if I am used to doing experiments, I normally, even if I do them on myself, I normally never experienced this level of anxiety. Within two hours of conducting the FMT and I used capsules for the fecal transplant; I use enteric capsules. I have people call me and this is not a simple thing for a lot of people; they get desperate and they make a lot of mistakes; it’s an incredible number of mistakes they’ll make. Within two hours, the constant bladder pain just stopped. The IBS kind of progressed later on. It got better about a day or two later because when I did the FMT, I had a little diarrhea and I started testing on day one on two different things. Alcohol was something I could not touch; very few types of alcohol; very little amounts. I tested red wines, stout beers, pistachios, dark chocolate, coffee, within moderation; I have very small amounts, which I could not tolerate before in any way or form. And I was able to tolerate them as soon as I did the FMT. So I did the FMT 10 days in a row. Each day, I consumed via capsules, a solution of 50 grams of fecal matter, which I separate from the solids.
Lindsey:
Okay, and that was how many capsules?
Einar:
The average I’ll say is about 100 capsules a day; 0.8 milliliters per capsule, that you feel very bloated.
Lindsey:
Did you do those all at once, or like throughout the day?
Einar:
The protocol I recommend and I want to specify that I’m not a doctor, not a nutritionist. To make sure that the capsules release in the intestine, I fast for 16 hours, because food can interfere with the process, it could delay it. They could accidentally release in the small intestine or in the stomach, and they can make you sick. I accidentally made this mistake three months later; I had a full stomach, I was like well, let me take a couple of capsules, and I gave myself SIBO, which you do not want to give yourself SIBO. It is a horrible condition. I was able to reverse it. It took me about a week to reverse it. I want to emphasize this, it is complicated. It’s not that simple. For every day and I took a break of one day or two days within this 10 day period. It was a 12 day period. Again, my son produces fecal matter usually every day but not every day. So there were two days he didn’t produce, so I didn’t do this.
Lindsey:
How throughout the day, you’ve said 100 capsules, are you taking these all at once? Are you taking these like in three batches or how did you do it?
Einar:
No, I sit in my bed, well back then it was my bathroom. I have a very large bathroom. I fill each capsule and I consume each capsule immediately. I consume it within less than an hour. I processed and consumed within less than an hour. I think two hours is still okay, but you want to take the microbiome as fresh as possible, if you have the ability to do so.
Lindsey:
Yeah, but most people don’t have a donor who’s right there in their house ready to give each day. You’re not freeze drying or anything, you’re taking a solution and presumably have some sort sterile way of getting the solution into the capsules without spilling…
Einar:
Yes. Well, the challenge that the biotech industry has with this procedure is that we are used to being in a sterile environment. And this is the dirtiest thing you can possibly imagine within the biotech industry. It’s poop. There are 500 bacteria species and 90% of our DNA is basically bacteria species. This could explain probably why we have more DNA from the mother than the father, because we inherit all of these species when we’re born. One of my many crazy theories. I fill each capsule because the enzymes of the FMT will start dissolving the capsules from the inside. At the same time, the acid in your stomach, could probably put some pressure on the capsules. Then, once he hits the colon, then it releases. And if you’re healthy and if you can process food fast or normal, fresh capsules are not a problem. If you have a slow digestion, I normally tell, when people call me and ask me for my advice, I say, “Well, I would personally do an enema if I’m constipated”, but if I am digesting very fast, I do capsules and I would fast 16 hours before, and not eat anything for two and a half hours. Part of the biotech industry testing for any product is we take whatever you consume, it’s called the acid simulation or the stomach simulation test. You take a strong acid, I’ve got a swimming pool, so I got the acids from a swimming pool and I put the capsules in it. The capsules will last in a stomach acid for a long period of time but that does not simulate the pressure your stomach will put on or your colon areas that are going to put on the enzymes that are there. That’s why when I do it fresh, I do it within very quickly for any type of capsule. And the frozen they normally have to use a double capsule to prevent them from falling apart. If you actually put it in, you will see within two or three minutes, the capsule, once you put the fecal matter in the capsule, the capsule starts dissolving from the inside, they start getting soft. So I just fill them, take it and when people call me and ask me for details I say, “You don’t sit and do 10, you do one. If you’re really sterile, you do two or three, and if you can swallow three at the same time, sure. If you can’t, do one at a time.”
Lindsey:
Okay, but do you have some sort of a capsule filling system to make sure there’s no fecal matter on the outside of the capsules is what I was getting at?
Einar:
Oh, yes. I use a syringe with the blunt needle to make sure that all the drops go in. Sometimes I use a pipetter. After 25 years working on many, I have the dexterity of a god. I was born in a veterinarian’s house because as a child, I was mouth pipetting from age 5. I’m actually very good at dispensing things. Again, the normal person might not have- it sounds like I’m exaggerating. No, it is actually hard to dispense and pipette. People have to go through extensive training to do this for years.
Lindsey:
Let me stop you for a second; you said you went on the carnivore diet. What changes did you see from that versus the ones you saw after doing the FMT?
Einar:
They were very similar. They were a little slower. For the carnivore diet, it took close to a week to start feeling the pain stop in the bladder. The fibromyalgia also went away, the IBS did not.
Lindsey:
Was your IBS like a IBS-D or an IBS-C?
Einar:
IBS-D. I mean it started with a C probably earlier on but usually in most people it’s then progressing to a D, but it is possible that mine might have not been as much IBS because a high fat diet makes you very regular. Some people take nine months to a year and a half for the stool to solidify. I did it for six months and then I added some carbs on and off, but in most conditions, tendonitis improved significantly, my hair started growing and my eyesight started getting better. I don’t remember when my graduation was, but it improved by 50% so where I needed to see you before with glasses, I don’t need them now for long distance. I only need them for reading. I’m still shocked, and they are sort of things that I didn’t list that were unexpected. Some people ask me, “oh, well, maybe what it was, it was in your head. It was a placebo effect. I’m like, “I used to bite my nails since age 10. I was constantly biting my nails. I won’t bite them anymore.” When I came off Clonazepam. I had a hat fetish. I could not leave my house or be anywhere without a hat, including inside my house. I have a 30-hat collection right now. All of a sudden, within two hours, it took me a week to realize that, hey, I’ve been a week without wearing a hat. It was a very odd thing. So I have some theories about the nail biting, it’s that your body is so starving so much for this bacteria that it is looking for any dirt under your nails to pick it up in your stomach.
Lindsey:
Interesting. Okay, and then some other things that you had put on the list for me, high cholesterol and triglycerides.
Einar:
Oh, that disappeared with a carnivore diet. I was shocked.
Lindsey:
HBP, high blood pressure, was it?
Einar:
Well, sorry, my blood pressure did not change a lot. I’m not sure if it’s because I was not eating enough salt and I was having the occasional drink. About a few months ago, I did quit cold turkey, alcohol, or at least like cut down to a significant level. This is the problem with FMT. Everybody wants to go party the moment it works and live again. You feel you want to be normal; we all want to be. I went to the doctor and my blood pressure was 190/50 about a few years ago. I went to the doctor about a month ago, and it was low: 120/70. I think it was, which I was like, I haven’t had that blood pressure since I was in my late teens.
Lindsey:
Oh, so you were saying it was 190 before?
Einar:
Yeah, well, 150 or 190.
Lindsey:
Okay, because I thought you said 90, which I had blood pressures taken like that that were 90/50 and the people were a little bit nervous. They’re like, is it usually that low?
Einar:
I work with a lot of pathologies, that I’m not a pathologist or a doctor. I do remember that there is a significant difference between women and men on blood pressure and it may be also diet related. I’m not sure.
Lindsey:
Yeah, no, I’ve had doctors tell me eat more salt.
Einar:
Yeah, you know. We’ve been told that salt was horrible for us and I nearly cut off all salt and my blood pressure did not drop. I’m eating fistfuls of salt. And my blood pressure is beautiful.
Lindsey:
Yeah, I tend to think of high blood pressure along with the entire spectrum of metabolic syndrome, prediabetes and I think high cholesterol goes along with that. So your prediabetes, that also resolved under the carnivore diet?
Einar:
Yes, yes. It improved significantly; it went away. I don’t get those blah after you have a meal. I can run all day. Let me go back a second, I did a whole video on the night after. I was feeling a bit of anxiety and I thought it was a lot of anxiety what I was feeling when I did the FMT, but because I had that surgery on my lung, I can tell changes in my breathing pattern better than most people. So I felt my lungs started stretching. I had free breathing abnormally compared to how I was breathing normal, not abnormal, but I always been breathing abnormal, so I couldn’t tell the difference. What I realized is that, children breathe through the diaphragm, so all of a sudden, I’m using my full lung capacity, I’m standing straight, like I always had like a hump, and scoliosis. All of a sudden, I’m standing super straight. Same thing happened with a carnivore diet, you start standing a lot more straight than before, your muscle mass and tone improves significantly. I’m breathing and I’m only needing to sleep 4 hours. I’m all wired, like a two year old running around the house with so much energy. I wrote like a 30,000 page book in a week. I have come down since, but those 10 days of FMT were just…
Lindsey:
It was like Superman.
Einar:
Yeah, and with the carnivore diet, your sleep pattern gets reduced because you get better quality of sleep. You don’t need to sleep 12; I used to sleep 12 hours today and I was exhausted. Now, four-six hours I can. I’m trying not to run a marathon because I’m done with that, but…
Lindsey:
Feeling so good, okay, and so just to differentiate between the carnivore diet. It sounds like you did the carnivore diet and most of your things cleared up, but then you started eating some more carbs and then maybe some of those things were sort of coming back? What was coming back or what was still an issue at the time you did FMT?
Einar:
One of the problems with a carnivore diet for me is that I didn’t have the right bacteria to process some types of meat. So I couldn’t do dry meat, aged meat and a lot of different meats that are higher in histamine. I had to basically eat raw beef almost. I seared it 30 seconds per side. That was it. It’s not the worst life but it’s not the greatest either. When I did the FMT, it allowed me to process all these other meats I couldn’t eat before and occasionally cheat and have a normal life. I can go out and I can have sushi, and I don’t have to just eat the sashimi. I can add some rice to it. I don’t have to pay for it heavily. I’m trying not to do that every day because my research indicates that human beings are not supposed to eat as much carbs as we’re eating now. That’s seems to be the root cause of all these illnesses, or at least what then starts the illnesses progressing. That and antibiotics seem to be the issue. The carnivore diet was very interesting in that it helped me improve, but the quality of life was not the greatest when you can’t do a social life. Eventually you get bored and blah of eating fat and lard. It’s just… you need at least a day off once in a while.
Lindsey:
That sounds pretty miserable. How did you assess your son’s fitness as a donor for FMT?
Einar:
Well, I developed a very long questionnaire and probably won’t bore you with every detail, because I don’t have it open and it’s hard to remember every single step of it. I developed this for a couple of tissue banks in my career, where you have to assess a donor. It’s not just blood work, that does not tell you what the microbiome is like. The microbiome is associated with pretty much everything. If you’re losing hair or your hair is thinning, that’s a microbiome issue. If you don’t have good muscle tone, microbiome isssue. Your eyesight; your skin. I looked at my son and the first thing is okay, how was he born: vaginal birth. Ding ding, that’s a good one. Breastfed through it was one year and eight months. I exposed him to dirt and that’s a huge thing for children right now. They’re trucking, I can’t remember what European country, is trucking dirt to kindergarten so kids can play with dirt. So I had run in a previous study from Mongolia, where they find out that Mongolian people consume more dairy than anybody per capita, I think, and they don’t have a genetic abnormality to process that much dairy. And the reason is, because they don’t sterilize their dairy products. They’re still heavily contaminated with the organisms that live in the natural environment, so I let my son play with a dog. I didn’t sterilize the house, I just clean very, very normal. We go out into dirt like with cow manure and throw it everywhere in the garden. He plays; he gets dirty; he finds the dog’s . . . sticks his hand in it. Sometimes I cringe when I say, he sticks the dog bone in his mouth. I let him do his normal things that I guess Paleolithic men were doing. That’s where they were healthy and strong. I was born in a third world country; the healthiest people are the countryside people that work directly with the farm and the animals. I did that because children are the harder target to get. You also examined the mother, because their microbiome comes from the mother. The mother doesn’t have any health issues that at least I’m aware of and you also want to see the demeanor of the person that you’re transplanting from, that the demeanor is also a big indicator if a person has depression, anxiety, sad in thought, erratic behaviors and so on.
Lindsey:
In terms of pathogens, you did a GI Map on your son, right?
Einar:
Eventually I did. At first, I didn’t do it because I didn’t suspect him to have any pathogens. Most pathogens show in different patterns. At the time, I had nothing to lose.
Lindsey:
It does sound like it. I saw the GI Map from your son and I noticed that he does have H pylori in his gut. I’m just curious about your thoughts on taking in stool that has H pylori.
Einar:
Yes, H pylori is natural. There is H pylori and then there is H Pylori and then there is an amount of H Pylori. If you read, there is a target and then there is a number. The number is below the target. So, I think the target is 103 or 104, and then the amount he has is about one log below that. That is normal and then I think below you have all the pathogenic type of H pylori, because you can consume, for example, raw food that has E coli and nothing happens because it has not switched or you could drink dairy that has Candida. You’re not going to get sick from Candidiasis.
Lindsey:
It doesn’t have the virulence factors. I do see a lot of clients who have H pylori with no virulence factors, but they are very symptomatic. And even clients whose H pylori shows up on the GI Map below the reference range, but still again are symptomatic and very much improved after it’s gone. I’d be hesitant to be honest. I would be hesitant to take on H pylori, but as you said, you didn’t have much to lose.
Einar:
Yeah, but you’re not going to find or is very rare to impossible to find a person without any amount of H pylori. That’s why you do the examination. Okay, you have H Pylori. Is it making you sick? No. So then you have normal, healthy amount of H pylori, right?
Lindsey:
There’s enough of other good bacteria to keep it in check.
Einar:
Yes and for example, my ex-wife and one of my cousins, they develop the bad type of H pylori, but they are symptomatic. If you’re asymptomatic, is very likely that H pylori is not really pathogenic.
Lindsey:
Okay, and so, you did over 10 days, you were taking a bunch of capsules a day, did you do any kind of ongoing FMT protocol then after that?
Einar:
No, I chose the fasting before and after 16 hours. I tried to eat a low carb diet, except for the foods I was introducing on my experiment. My reasoning is that every person has yeasts, aerobes and anaerobes. You want to say they have… let’s call it an army, let’s call it the 300. You can have about five to 25 pounds of poop in your gut. What you’re introducing is let’s just say, most companies sell about 10 grams per dose. It is a very, very small amount. The 300 is fighting the Persian army of a million. To give it a fighting chance, you have to cut down on the bad bacteria you have in your gut. So you give them a fighting chance. A lot of people just go crazy eating carbs and this is why it doesn’t work long term or if it doesn’t work at all, for most people, especially unless you get the dose that I introduced myself. I also put my son under the same diet. I increased the chances of his microbiome to be strong. My son has always been on a paleo diet with dairy and high fat. I myself am on a high fat diet and that probably helps with that.
Lindsey:
Okay, and so just to go back to interstitial cystitis. After the fecal transplant, did that completely resolve or is there still some trace of that?
Einar:
No, there is some trace. The frequency improved significantly around day 10 of the experiment, but eventually the frequency when I started introducing more carbs started getting worse. Right now I’m going back to eating a more carnivore diet again.
Lindsey:
When you say carbs, are you talking about vegetables or we talking about rice? What do you…or bread?
Einar:
Any type of carbs. Yeah. So I spoke with a Candida expert and she explained to me that the reason why her and a lot of other scientists suspect that a lot of these conditions are caused by candidiasis. The reason you can’t really eliminate it entirely is because it fits through the bloodstream directly, not through the stomach only, even if you cut off all carbohydrates and sugar, you just basically put them dormant or slow them down, but they’re still going to be there.
Lindsey:
Your body converts protein to glucose.
Einar:
Yeah, currently, yeah. Glucose. Sorry. Yeah. So I guess until we figure something out, I’m stuck with it.
Lindsey:
Yeah. Have you tried reducing oxalates? Well, I guess if you’re eating meats, you’re not having any oxalates but any kind of…
Einar:
Oxalates, I forgot the names of them. I have reduced all of that and it makes a difference on other things, but on IC the bladder, not as much. I’m going guess it’s just glucose; the issue with that.
Lindsey:
Yeah. I see a lot of people who have urgency and maybe not an official IC diagnosis, but then when they go on calcium citrate to help absorb oxalate crystals and then also reduce their oxalates in their diet, that improves a lot.
Einar:
I mean, you also going to get some oxalates from animals that consume these vegetables and then you’re processing because they are not already eating the natural diet that they’re supposed to be eating. We’re feeding them a high corn diet, but I can’t afford to go. I mean, a carnivore diet is already expensive enough, to do an all grass fed diet.
Lindsey:
Yeah, I can imagine. I know you have posted several videos to YouTube. Can you tell me about what those videos are about and I’ll link to those in the show notes.
Einar:
Well, I wanted to teach people how to do the process as asceptic as possible, because I’ve seen a lot of videos but they don’t explain a lot of things about the process in the FMT. I did an entire video on how to assess a donor based on the characteristics of the donor. I did another one explaining high histamine… so a lot of people we see or call me- SIBO is a tough one to help people with – but I did a video explaining why the histamine reaction happens because of the slowing down on the body of the food processing, that it starts rotting. You don’t have the right bacteria to clear that out of the way. It just sits there, rots and creates all these histamines and you start getting worse. I got requested to do it also in Spanish. I’m multilingual. I did a video called tricks and tips on how to process FMT because of the gagging reflex. We have been programmed to think of poop as a bad thing and then all of a sudden, you’re trying to no matter how you encapsulate it, you have to sit there, process it and smell it. It smells awful. I have worked with cadaver tissue. I have worked with a lot of things that were disgusting, but this one was the worst. I explain how to put Vicks under your nose to help you a little, it’s not a perfect thing. How to maybe run an extractor. If you’re in a bathroom or near a bathroom, how to stay away from water sources, because there can be contaminants, although poop is already heavily contaminated, but keeping pets away so the dog hair can’t just get in it or cat hair. On how to clean the area, what materials and equipment to use, what’s the right type of capsules, and the type of syringe is probably going to be more beneficial because a lot of people want to use a pipette, sounds cool, but it’s not, it gets plugged very easily. A 10 cc syringe is probably the best with a blunt tip, even if you cannot get the blunt tip, the 10 cc syringe will be good enough. I originally bought a 60 cc syringe, which was very big and bulky to maneuver, but I settled after all the equipment that I bought, on a 10 cc syringe.
Lindsey:
Just to make sure people don’t go off and just grab their kid’s stool and start doing FMTs, I do want to say it is a good idea to test for all types of pathogens. I can link to a list of all of the different things one should be testing for. I think it’s the European consensus or something on stool testing for FMT.
Einar:
Yes, there is the European consensus. The FDA has some guidance. I mean, the GI Map is a good test to conduct and you have to go through a doctor. You can call him and ask him or talk to a microbiologist or somebody. I have read on reviews a lot of and I’m not, I don’t work as a microbiologist, but I work with a lot of laboratories that were under my supervision that I have I understood enough and I have to release tissue products as part of quality engineering. I can read them well enough, but I wouldn’t call me to release for other people. Better an expert.
Lindsey:
Okay. Are there any supplements that you took in addition to doing FMT that were useful for your situation?
Einar:
When I did it, I didn’t, because in itself, the FMT is going to be much better than any anything you can take. Later on, I discovered there are some supplements and other bacteria you can take that can help different conditions. I ran into a study that used L-glutamine to rebuild the gut, because most of our conditions seem to be linked to leaky gut or they’re causing the gut to leak for some reason. The L-glutamine, I think, study suggests that 15 to 20 grams a day and it helped about 70 something percent of people with IBS. Then I ran into a few other studies, one used S boulardii.
Lindsey:
Saccharomyces boulardii. It’s a yeast.
Einar:
Saccharomyces boulardii. I used that yeast. They use S boulardii to treat SIBO. So if you cannot get your hands on FMT, I would try that and then Lactobacillus casei. It’s been a couple of years since I’ve dealt with microbiology. So my apologies, Lactobacillus casei seems to help people with prostatitis or chronic bladder pain, IC of the bladder, sometimes it’s called BPS, which means bladder pain. BPS, PBS; it has many different acronyms and names. The consensus is still out there. I personally think that all of them are the same condition. This is my theory. Your microbiome is about 70% of your immune system and then your genetics are the other issue that you have. Your microbiome can protect your genetic deficiencies, if they’re still not being stressed out enough, so it protects. Once the microbiome starts dying, then all your genetic conditions start causing problems. My theory seems to make sense it’s, for example, people with schizophrenia, when you do an x-ray of their brain, you can tell that the person has schizophrenia, but not everybody that has that brain condition is schizophrenic. My theory is that it’s the microbiome that basically protects that person. There are people with a genetic trait of celiac; you don’t see them with celiac disease. It is complicated and I think that using these other ways can probably improve your odds if you’re doing. I didn’t know then what I know now. Right now, I’m taking boulardii, casei, and I’m doing the L-glutamine.
Lindsey:
Yeah, that’s a pretty common supplement for leaky gut sealing up or concurrent with the gut healing protocols.
Einar:
I’ve got to tell you, it’s very hard to think straight when you have all these conditions on top of you. You’re coming out of Clonazepam. So the things that are clear and simple and make sense now . . . I don’t even know how I held a job for the last 15 years. I’m still wondering about that.
Lindsey:
You read all the studies and did all that stuff. So it great that you’ve been able to…
Einar:
I rebuilt houses with fibromyalgia. I was passing out every now and then. Raised children… I don’t know how I did it.
Lindsey:
Sheer will power, I think. Having a positive attitude has a lot to do with it. Because even if you’re feeling miserable, if you have a good attitude, you’re still hopeful and you just keep pushing through, then somehow . . . versus hopelessness. I can see people who are truly hopeless and it’s a heck of a lot harder to push through.
Einar:
I want to do a video on this, but I don’t really know how to do it. I don’t really like videos that much but I get people calling me on they’re like: “I’ve been suffering for a couple of years.” And I’m like: “try 40.”
Lindsey:
Just to back up, what do you think destroyed your microbiome? Did you take a lot of antibiotics or…
Einar:
Yes, when I was around 10, I was very thin and the doctor thought that there was a bacteria in my gut that he needed to kill. I was given an abnormal overdose of tetracycline. I do remember that. I developed a lot of skin cancer since. It was like every year. That also seems to have stabilized.
Lindsey:
Skin cancers?
Einar:
Oh, god, yes.
Lindsey:
As a child?
Einar:
From age 12. Yeah.
Lindsey:
Basal cell carcinoma, not like melanomas?
Einar:
All of them.
Lindsey:
Really, even melanomas?
Einar:
Yeah. I had several melanomas, one of them in late stages. It almost entered my bloodstream. It was about an inch, inch and a half in diameter. I am a human wreck. I’ve got more stitches than a baseball.
Lindsey:
I’m glad that one didn’t go metastatic! . . . Well, thank you so much for sharing about your experience with us. It’s very interesting.
Einar:
It’s been an absolute pleasure. Anytime you need to reach out and talk to me about anything. I’ll do my very best. I’m not an expert on all of this because it’s not my full time job, but I do what I can to help people because I know what you suffer, what I’ve gone through. This is not good.
Lindsey:
Well, I appreciate you coming on!
If you’re struggling with from Interstitial Cystitis, IBS, Fibromyalgia or other gut health disease, you’re welcome to set up a free, 30-minute breakthrough session with me (Lindsey). We’ll talk about what you’ve been going through and I’ll tell you about my gut health coaching 5-appointment program in which I recommend lab tests, educate you on what the results mean and the protocols used by doctors to fix the problems revealed. Or if you’re ready to jump in right away or can just afford one appointment at a time, you can set up an 1-hour consultation with me.